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How an ADHD Diagnosis Was Lost and Found Again: Nikki Daye’s Journey

31 May 2025
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Reading time: 6 minutes

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Introduction to Nikki Daye and her ADHD journey0:00
Nikki’s first ADHD diagnosis as a teenager1:18
Understanding echolalia and its connection to ADHD3:30
Challenges with ADHD treatment and lost medical records5:27
Aging out of her ADHD diagnosis and rediscovering it9:11
Intersectional insights on ADHD and trauma15:08
Nikki’s advocacy work for children with ADHD20:33
Outro and credits26:10

Understanding ADHD: A Journey of Self-Discovery and Advocacy

Did you know that ADHD affects approximately 5% of adults worldwide? Yet, many individuals remain undiagnosed or misdiagnosed, often struggling with their symptoms in silence. In a recent episode of the "ADHD Aha" podcast, host Laura Key and guest Nikki Day shared their personal experiences with ADHD, shedding light on the complexities of living with this condition. Their stories are not just about challenges but also about empowerment, understanding, and advocacy.

The Early Years: Diagnosis and Misunderstanding

Nikki Day's journey with ADHD began in her teenage years, a time when the understanding of the disorder was still evolving. Diagnosed with ADHD amidst a backdrop of significant trauma, Nikki faced a unique set of challenges.

“There was a lot of overlap between my trauma and my ADHD,” she explained, highlighting how symptoms like difficulty concentrating and impulsivity were often misattributed to her traumatic experiences rather than recognized as part of her ADHD.

In her case, the lack of conversation around the intersection of trauma and ADHD left her feeling confused and misunderstood. This is a common experience for many individuals, especially those from marginalized communities, where the nuances of mental health are often overlooked.

The Struggle for Clarity: Lost in Translation

Navigating the healthcare system can be daunting, especially for those in foster care, as Nikki experienced. With her medical records lost and her history fragmented, she found herself starting from scratch in her early twenties.

“I can’t even tell you who I was before. I don’t have access to those records,” she lamented, emphasizing the frustration of having to re-explain her history to new doctors.

This struggle is not unique to Nikki; many individuals with ADHD face similar challenges in obtaining a clear diagnosis and appropriate treatment. The stigma surrounding mental health can further complicate these experiences, leading to feelings of inadequacy and confusion.

The Intersection of Race, Gender, and ADHD

As Nikki navigated her ADHD journey, she began to recognize the additional layers of complexity that race and gender added to her experience.

“There is so much overlap between trauma and ADHD in our Black and Brown communities,” she noted, pointing out the misdiagnosis that often occurs when symptoms are misunderstood.

The pressure to conform to societal expectations can be overwhelming, particularly for women of color. Nikki shared her experiences of being labeled as aloof or unengaged in professional settings, which often stemmed from her ADHD symptoms rather than a lack of interest.

Finding Solutions: Tools for Success

Through her journey, Nikki discovered the importance of creating systems that work for her and her daughter, who also has ADHD. She emphasized the need for flexibility and understanding in managing ADHD, both for herself and her child.

“Even though she couldn’t explain to me what was happening, I was trying to manage her the way I managed me, and that was making it so much worse for both of us,” she reflected.

This realization led to practical solutions, such as using "dump bins" for organizing her daughter's toys, which helped reduce overwhelm and foster independence.

Traditional OrganizationDump Bin Method
Separate containers for each itemOne bin for multiple items
Requires detailed sortingAllows for easy access and less stress
Can be overwhelming for childrenSimplifies the process and encourages participation

The Power of Advocacy

Nikki's experiences have shaped her into a passionate advocate for children with ADHD and their families. By sharing her story, she hopes to foster understanding and compassion among educators and caregivers.

“I want to explain what is happening to the students that I’m advocating for, to the parents or the caregivers,” she stated, emphasizing the importance of empathy in education.

Her unique perspective allows her to connect with families who are navigating similar challenges, providing them with the tools and support they need to thrive.

Conclusion: Embracing the Journey

Nikki Day's story is a powerful reminder of the complexities of ADHD and the importance of understanding its impact on individuals from diverse backgrounds. Her journey illustrates that while ADHD can present significant challenges, it can also lead to profound self-discovery and advocacy.

As you reflect on this journey, consider this actionable takeaway: If you or someone you know is struggling with ADHD, seek out resources and support that acknowledge the intersectionality of race, gender, and trauma.

What strategies have you found helpful in managing ADHD? Share your thoughts in the comments below, and let’s continue this important conversation together.

For more resources on ADHD and support, visit understood.org and explore the wealth of information available to empower individuals with learning and thinking differences.